JANUARY 2006


Notes from Maastricht

Professor Hans Evers, president of the World Congress on Endometriosis in Maastricht, Professor Robert Shaw, past president of the WES, and Professor Rodolphe Maheux, executive-secretary and current president of the WES.
  1. Among the many interesting news items to come out of Maastrich was information about a new non-invasive diagnostic test for endometriosis. Researchers at Vanderbilt University have discovered an antigen and its antibody which are common to women with endometriosis but not found in healthy women. Based on this Valeo Medical Inc has developed a simple blood test and validated its assay on more than 600 human clinical samples.

  2. Currently endometriosis can only be diagnosed through surgery and recent studies have indicated that it may take as long as 8 years for a diagnosis to be established. A study by Matsuzaki and Canis et al examined the relationship between delay before surgical diagnosis and severity of the disease in patients with symptomatic deep infiltrating endometriosis. It was concluded that delay between onset of pain symptoms and surgical diagnosis may be associated with the severity of disease in patients with DIE.

  3. Also of interest were the findings reported by Sue Treloar et al in a study of 3895 Australian women that almost two thirds of the women who smoked indicated that starting to smoke coincided with the onset of endometriosis symptoms.

  4. Previous studies have linked exposure to dioxin with endometriosis. A poster presentation by MS Sugamata et al of Japan examined the link between endometriosis and the common urban pollutant diesel fuel. Findings concluded that diesel exhaust exposure accelerates the development of endometriosis in rats.

  5. Finally, many patients now turn to the internet for information about medical problems. In Germany FS Suwandinata et al developed a site where patients, health workers and other interested individuals could inform themselves and obtain counsel free of charge about endometriosis-related symptoms. By filling out a computerised questionnaire called "Endotest" patients received a computerised score indicating the likelihood of endometriosis. Specific questions could also be asked within a forum called “Expert Consultation”.

    From January 2002 to January 2005, 2627 consultations were received; between July 2003 and January 2005, 14,829 questionnaires were filled out. Additionally data collected from the website provided valuable information for health insurances companies, politicians and doctors. The findings indicate that health care professionals must be prepared to offer information about internet-related resources.

Patrick Groothuis presents Luca Fusi from the United Kingdom (left) with the Best Abstract Award for "Therapeutic targeting of steroid sulfatase activity in endometriosis", and Melissa Parker from Australia (right) with the Best Poster Award for "The prevalence of menstrual disorders in teenagers".

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